EngageAll Clubfoot Pakistan Privacy Policy
EngageALL Clubfoot Pakistan is a digital health solution platform developed by the
Miraclefeet and community and civil society partners, powered by Dure Technologies, to
enhance and support community-led monitoring of the Clubfoot response. Respect for your
privacy and confidentiality is key to the success of community-led monitoring. This
EngageALL Clubfoot Pakistan Privacy Policy is therefore meant to help you understand what
information EngageALL Clubfoot Pakistan collects from you, how the information is used,
where the information is stored, with whom the information is shared, and how you can
manage or delete your information.
What kinds of information does EngageALL Clubfoot Pakistan collect?
EngageALL Clubfoot Pakistan collects six kinds of information. First, EngageALL Clubfoot
Pakistan collects the personal information you provide in the Registration Form which
appears in your User Profile. The Registration Form may require you to provide your age,
gender, the type of user you are, the kind of Clubfoot you have, whether you identify as a
Clubfoot key population, and information about your health facility. If you identify as a
Clubfoot key population, in doing so you may provide personal information about your
occupation, your income status, your legal status as a prisoner, your immigration status,
whether you use drugs, whether you have a disability, or your ethnicity.
Second, if you allow it to do so, EngageALL Clubfoot Pakistan collects geolocation data
about where your device—and therefore oftentimes where you—are located. This data is
collected using the Global Positioning System (GPS).
Third, EngageALL Clubfoot Pakistan collects information about your health that you provide
in the Registration Form, and possibly in the Get Involved section or in surveys that may be
conducted from time to time in the app. This includes information about your Clubfoot, if
you are living with HIV, your health care, the health care of your family or close contacts,
and possibly other health-related information.
Fourth, EngageALL Clubfoot Pakistan collects the information you provide when you chat
with other users in the Get Connected section.
Fifth, EngageALL Clubfoot Pakistan collects the information you provide when you submit a
report in the Get Involved section. This is the information you provide in ticking the boxes
that apply to you when you submit a report about a Clubfoot Challenge.
Sixth, EngageALL Clubfoot Pakistan collects information about the device on which you
have installed EngageALL Clubfoot Pakistan. This includes unique identifiers, browser type
and settings, device type and settings, and operating system.
How does EngageALL Clubfoot Pakistan use your information?
The information EngageALL Clubfoot Pakistan collects from you is used in the following
ways:
The personal information you provide in the Registration Form is used to identify you as a
unique individual and to allow you to report and obtain resolutions for Clubfoot Challenges.
Your personal information may also be de-identified and aggregated with other user’s
information for analysis to better understand and improve the Clubfoot response in your
country and around the world.
The geolocation data about where your device—and therefore oftentimes where you— are
located is used to identify and show you the nearest health facilities, to track the location of
where reports about Clubfoot Challenges are submitted, and—in aggregated, deidentified
form—for analysis to better understand and improve the Clubfoot response in your country
and around the world.
The information you provide about your health is used to enable resolutions for the Clubfoot
Challenges you report and—in aggregated, deidentified form—for analysis to better
understand and improve the Clubfoot response in your country and around the world.
The information you provide in your chats in the Get Connected section is not used for any
purpose beyond allowing you to communicate with other EngageALL Clubfoot Pakistan
users.
The information you provided in the Get Involved section by ticking the boxes that apply to
you when you submit a report about a Clubfoot Challenge is used to enable resolutions for
the Clubfoot Challenges you report and—in aggregated, deidentified form—for analysis to
better understand and improve the Clubfoot response in your country and around the world.
The information EngageALL Clubfoot Pakistan collects about your device is used to
facilitate updates in the app to maintain and improve EngageALL Clubfoot Pakistan’s
operation.
Where is your information stored, who stores it, and for how long?
The information EngageALL Clubfoot Pakistan collects from you is stored as digital data by
a commercial cloud computing service that is owned and controlled by Dure Technologies,
Microsoft Azure. With this service, your data is stored on a physical server in the United
States of America, where Microsoft is based. For some countries using EngageALL Clubfoot
Pakistan, your data is stored locally on a physical server in your country. You can find out
where your information is stored.
With the exception of the information, you provide in your chats in the Get Connected
section, the data collected by EngageALL Clubfoot Pakistan is stored for as long as the
project is in operation in your country or until you submit a request to delete your account
and its data.
How is your information shared?
With a few exceptions, the information collected by EngageALL Clubfoot Pakistan is only
accessible to the individuals involved in the project at the organization implementing
EngageALL Clubfoot Pakistan in your country. This includes your personal information, the
information you provide about your health, and your geolocation data.
All information shared with individuals outside the EngageALL Clubfoot Pakistan
implementing organization, including government authorities, is stripped of all personally
identifiable information. This means your data is de-identified, so that is very difficult to
impossible for anyone to identify you or your information. Often, when your data is shared in
this way, it will be aggregated with the data from other EngageALL Clubfoot Pakistan users.
However, you may consent to allowing your personal information to be shared with first
responders, such as the information you provide when you submit a report about a Clubfoot
Challenge in the Get Involved section.
The information you provide in your chats in the Get Connected section is not accessible to
anyone beyond the EngageALL Clubfoot Pakistan users with whom you chat and the
moderator of the forum from the organization implementing EngageALL Clubfoot Pakistan.
